Health Diaries > The Trichotillomania Blog
January 20, 2007
The Trichotillomania Blog
Welcome to The Trichotillomania Blog, a group blog open to everyone who wants to post. Post personal stories, links to interesting trichotillomania websites and blogs, news stories, commentary, or just your thoughts for the day. Post as often as you like. No registration required! Visit the submit page to submit content.
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I have a daughter who is 15 who has had Trich since she was 11. It is breaks my heart to see her struggle with this. She is in therapy and on Prozac and talks. Grows her hair back, loses it. Tries to hide the fact she is pulling her hair again, you name it. I would go to the ends of the earth for her, and have. I feel all the Dr.s I have gone to (around 8-10) have all relied on my knowledge of this disorder to guide them. It is exhausting and frustrating. I feel so lost sometimes, and sad all the time for this precious girl. Her present Dr. keeps calling her "a success story"! She is still pulling her hair out! Just because she is a beautiful blonde knockout and doesn't currently have bald patches, I guess in this Dr. mind she is a "success story" yikes! Yet, she still pulls her hair out and uses hair products and bobby pins to keep everything in place to cover it all up
Chris:
I fully understand your frustration. My daughter is now 27 she came down with Trich at age 16. I have taken her to the best people in the country, including Dr.Ruth Golum, UCLA. She was recently featured on a documentary about Trich. Dr. Golum treatment out patient for several weeks did help her and she did stop for over a week which she never was able to do again after she returned home to N.J.
No one has been able to help her as most doctors know so little and I have spent hundreds of hours researching her problem. My wife also suffers from Trich so I know there is a genetic part to the puzzle. My other daughter aged 29 is fine, never having pulled. I keep looking every day for new treatments but unfortunately I do not see a cure down the road. All we can do is hope.
The Trichotillomania and Related Body-Focused Repetitive Behaviors Treatment Program at The Center for Emotional Health of Greater Philadelphia, LLC utilizes state of the art cognitive-behavioral therapy, family involvement, and emotion focused approaches to alleviate symptoms and improve self-esteem. The Center also sponsors a Trichotillomania and RBFDs support group. Please visit our website for more information.
Please visit my trich journal for tips and helpful links on TTM!
I have it and I go to doctors and take medication and everything, but I can't stop.
Everyone is telling me I have to want to stop and I have to do things to make it stop, but I can't. I just can't, no matter how much I want to. IN fact, I don't even want to stop. I like pulling my hair, it feels good to me. But a huge bald spot on the top of my head has now grown. And it's getting really bad. I don't know what to do.
Hey Isis:
I have this too, except I pull out my eyebrows. I keep getting the same remarks: put something over them, so you can't pluck or pull. Cut your fingernails short so you can't do it.
Bottom line is, I do it anyway. This article was interesting to me: http://www.salon.com/mwt/col/tenn/2009/01/06/trichotillomania/
I've never been to a doctor about it, but I have been thinking about going for a couple of months. I understand what you mean about it feeling good. There's a certain satisfaction you get with each hair or strand. And still, you're unhappy with the effects of this weird thing you do. I feel like an alien or something.
What have you learned from going to the doctor? Anything that has helped?
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Hi I have had trich since i was about 10 and now im 20 and realizing that it is a problem. Growing up my mom and dad would just think i was trying to get some attention and that wasnt it at all.I just couldnt stop the urge to pull. along with pulling my hair i pull my eyebrows ann down there and my underarms and sometime i even wanna pull my fiance' hair. Thank goodness he knows all about my urges and doesnt think im wierd but now i have a daughter and i just hope that she dont gat the same thing that i have. I never knew that they had support groups and stuff till recently when i was watchin obsessed and i hear Mandi's story and she even told them about the root biting and everything. I would never tell any0ne about that even my mom.
Hi I have had trich since i was about 10 and now im 20 and realizing that it is a problem. Growing up my mom and dad would just think i was trying to get some attention and that wasnt it at all.I just couldnt stop the urge to pull. along with pulling my hair i pull my eyebrows ann down there and my underarms and sometime i even wanna pull my fiance' hair. Thank goodness he knows all about my urges and doesnt think im wierd but now i have a daughter and i just hope that she dont gat the same thing that i have. I never knew that they had support groups and stuff till recently when i was watchin obsessed and i hear Mandi's story and she even told them about the root biting and everything. I would never tell any0ne about that even my mom.
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hi,
i have been pulling my eyebrows out since 8th grade. i always hated my eyebrows, due to the color and because of how bushy they were. i now am in my freshman year of college! the feeling of pulling has also made me continue to pull. how can i stop?
hi,
i have been pulling my eyebrows out since 8th grade. i always hated my eyebrows, due to the color and because of how bushy they were. i now am in my freshman year of college! the feeling of pulling has also made me continue to pull. how can i stop?
i need some advice on finding someone with experience dealing with trich and who is in my aetna network. i work for a mental health center and cant go here because there are too many facotrs that conflict. plus i am embarassed and cant ask for help. i have been sufferinf from trich since i think i was 11 yr old, starting first with my eyes brows....then my pubic area, and for the last 4 or 5 years on my head. it is so frustrating. i cannot stop. pls help.
i cannot afford allen weg or any of the TLC doctors. although i have been told they are great, i need someone in network.
i need some advice on finding someone with experience dealing with trich and who is in my aetna network. i work for a mental health center and cant go here because there are too many facotrs that conflict. plus i am embarassed and cant ask for help. i have been sufferinf from trich since i think i was 11 yr old, starting first with my eyes brows....then my pubic area, and for the last 4 or 5 years on my head. it is so frustrating. i cannot stop. pls help.
i cannot afford allen weg or any of the TLC doctors. although i have been told they are great, i need someone in network.
That's great info. This is so humiliating disease for the people with this condition. There must be a cure on this.
I am 23 years old and since the age of 8 I have been a chronic eyebrow and eyelash puller. I have been relapse free for the past 3 months since I started using Latisse. Occasionally I pick at my eyebrows but so far not my eyelashes (knock on wood). I had gone to all types of doctors including psychiatrists and no one wanted to help and especially did not want to provide any form of medication. Meds that probably wouldn't have helped anyway. The problem with myself was that I liked pulling out my eyelashes. It didn't hurt me and it was fun and relaxing...I wanted eyelashes but I also wanted to pick them out. Worse was that I was aware that I picked them out. It was only on occasion that I absent mindedly picked them. My success story not only came with the use of latisse, but years ago when I decided to tell people close to me what I had been doing all along and why i didn't have eyelashes. Just telling someone was the first step to healing. The more I would think about picking out my eyelashes and then the fact that I didn't have any made me more anxious...and I pulled even more out. Latisse however, has changed my life! I work in a pharmacy and tried it the second it became available. The greatest thing about it was not even the fact that it helped grow the minuscule eyelashes I had, and produce more lashes, but the physical application of the product every night made me aware that there was something on my eyes. My secret goal each day was to let the meds/drops on my eyelids work. I was conscious and aware all day that I was helping to grow my eyelashes. The more days that went by...the longer I had gone without picking any out. The habit of picking my eyelashes out has since dissolved and eyebrows has significantly diminished. I now have eyelashes to put mascara on, but they are so long, and full I don't need any eye makeup at all... I don't even have to use latisse everyday anymore...I only used it everyday for the first 3 weeks or so. I now have very few if any urges to pick out my eyelashes and if I do get the urge, I can stop myself and apply even just a small application of latisse and I am reminded not to pick them out. Also, the Latisse seems to make my eyelids slightly more tender than before I began using it...this however, is actually a good thing for eyelash pickers like me...If it hurts to pull them out, I am less likely to do so. I love having eyelashes!! I even felt like less of a woman without them. Having them is so important to make yourself feel beautiful. Now if I could only find something to make my breasts grow...!
I am 23 years old and since the age of 8 I have been a chronic eyebrow and eyelash puller. I have been relapse free for the past 3 months since I started using Latisse. Occasionally I pick at my eyebrows but so far not my eyelashes (knock on wood). I had gone to all types of doctors including psychiatrists and no one wanted to help and especially did not want to provide any form of medication. Meds that probably wouldn't have helped anyway. The problem with myself was that I liked pulling out my eyelashes. It didn't hurt me and it was fun and relaxing...I wanted eyelashes but I also wanted to pick them out. Worse was that I was aware that I picked them out. It was only on occasion that I absent mindedly picked them. My success story not only came with the use of latisse, but years ago when I decided to tell people close to me what I had been doing all along and why i didn't have eyelashes. Just telling someone was the first step to healing. The more I would think about picking out my eyelashes and then the fact that I didn't have any made me more anxious...and I pulled even more out. Latisse however, has changed my life! I work in a pharmacy and tried it the second it became available. The greatest thing about it was not even the fact that it helped grow the minuscule eyelashes I had, and produce more lashes, but the physical application of the product every night made me aware that there was something on my eyes. My secret goal each day was to let the meds/drops on my eyelids work. I was conscious and aware all day that I was helping to grow my eyelashes. The more days that went by...the longer I had gone without picking any out. The habit of picking my eyelashes out has since dissolved and eyebrows has significantly diminished. I now have eyelashes to put mascara on, but they are so long, and full I don't need any eye makeup at all... I don't even have to use latisse everyday anymore...I only used it everyday for the first 3 weeks or so. I now have very few if any urges to pick out my eyelashes and if I do get the urge, I can stop myself and apply even just a small application of latisse and I am reminded not to pick them out. Also, the Latisse seems to make my eyelids slightly more tender than before I began using it...this however, is actually a good thing for eyelash pickers like me...If it hurts to pull them out, I am less likely to do so. I love having eyelashes!! I even felt like less of a woman without them. Having them is so important to make yourself feel beautiful. Now if I could only find something to make my breasts grow...!
Hey everyone, Im currently 20 years old and ive had a problem pulling out my eyelashes since i was about 8-9. Its gotten so bad to the point where i let them grow back for abouta month and just go on a 3-4 day rampage and pull most of them out. CARA pretty much we have the same situation except mine is strictly eyelashes. (had the problem for you) Any Advice or even anyone to talk about it with would be great. dole.crego@navy.mil if you want to shoot me an email.
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